Saturday, May 1, 2010

Received CCSVI or Jugular Angioplasty on April 27, 2010 as treatment for MS

Hello Everyone, This is my first blog. I am here to write about my experience with CCSVI for MS. I had both of my Jugular Veins scanned via ultra sound on April 26Th. It was clear to anyone's eye that they were both blocked. Next the Dr. sent me to an MRV scan which is like a MRI but of the veins. This scan showed the same thing 2 blocked jugular veins. The next day they took me in for an angioplasty of the jugular veins. I was awake for the procedure with intravenous sedatives. The procedure was a little un comfortable. When they used the balloon to open my veins I could feel the air up each side of my face which caused a terrible headache like pain for about 5 mins on each side. The procedure took two hours. I was told that the blood pressure through the jugular veins should be between 40-50. Mine was 260 on one side and 300 on the other. Due to the blockage my blood had to push much harder to get to the brain or to drain from the brain. My amazing Dr. opened my veins back up to a 40. It has been 4 days since my liberation and I am still a little sore in my neck as well as my leg/groin area where the entered with the catheter.

Here is a little bit about my MS. I was diagnosed with RRMS in Jan of this year. So I have only had one attack and that attack happened in Jan. i only have 3 lesions two on the brain one on the spine all very small. I opp ed out of taking any MS drugs. My Dr. said because of how new my MS is it will take 6 months to a year to tell if the treatment has helped me. So I plan to blog on my progress and most of all help others to find there liberation. Thanks for reading Tisa

16 comments:

  1. OMG Tisa! I am so sorry you are dealing with this. I will keep you in my prayers!!!!

    xoxo
    Lisa Ritter

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  2. Thanks Lisa. Your wedding was beautiful you looked gorgeous!

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  3. Tisa, you are such an amazing woman! I am here to help and support you through your treatment and any future treatments you may have. Please do not hesitate to call me for anything. I will be there for you no matter what! I am sure you have an amazing team of doctors to guide you through this scary time. You are extremely lucky to have your supportive family and husband by your side! Please keep us all updated on your progress. If you do any sort of charity to help raise money for MS, please let me know I would love to be involved. Love ya honey and keep your head up! You have so much to live for. XOXO

    ~ Suzie Wilson

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  4. Thanks Suzie. I will be starting some kind of something to raise money and help others soon. My mom is going to help me get the word out. As soon as we get it set up I will let you know and would love for you to help. xoxo

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  5. You are a intelligent woman who had this procedure performed so early on with your MS. It seems that CCSVI is present even early on with MS and could be the actual cause of MS.

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  6. Thank you. I know. I wish the best for you

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  7. I hope with this procedure your ms never progresses. I had the angioplasty twice in a month period because of restenosis. I feel so much better after the angioplasty. I have had MS for 12 years .

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  8. You are a beacon, Tisa! Thanks for sharing and caring!

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  9. You're a champ. Keep updating, you are in our prayers.

    Steve and Susan

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  10. Tisa, what you are doing is wonderful girl. Bravo.
    Check out my blog whenever you feel like it.
    www.fightforccsvi.blogspot.com
    It s a bit spicy but still, it s worth the read.
    Everything is going to be just fine.

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  11. You really are fortunate to have such a forthcoming doctor who suggested this for you. You should present your wonderful testimonial to mainstream media so that they can support ccsvi and its relation to MS. Your story is very important since you were in the early or preliminary stages of MS.

    Thanks again for sharing your story with us.

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  12. Neelie, I am fortunate that my mother is great frineds with the Dr. who performed it. He is a cardiovascular surgeon. But he did his ccsvi research before he worked on me. My mother has a large involvement in charity work, she plans to help me spread the word through her media contacts. My Dr. is meeting the heads of hospital tomorrow to try and open up ccsvi to the public here in Arizona. I will keep you all posted

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  13. Hi Tisa,

    I know you don't really know me... I met you once at one of Megan's b-days. I think it was her 16th. Anyway, I'm Sheena and your experience is really inspiring. I'm so glad that Phil could find you some info. I know how important you are to the Schaechers (which kinda automatically means you are important to me) and I am excited to hear about you progress. You are definitely in my prayers.

    Sheena

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  14. Thank you so much Sheena that means a lot. God bless you

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  15. The CCSVI Liberation Treatment could be the cure but fact remains that the rate of re-occlusion is stuck at 50% and MS patients being treated in the European and Asian countries end up suffering as they did, 3 months ago. While Big Pharmaceutical Corporations and governments in the US and Canada are coming up with new ideas to stop any advancements to the CCSVI theory (Like the superbugs, etc.), millions continue to travel to countries like India and Poland to get this simple procedure and no valuable data is recorded to support the CCSVI theory. Unless we get our position strong enough to support the CCSVI Theory, we will never be able to beat the Pharma Corporations or start the treatment here and many will keep suffering and dying even after having the procedure done. I lost my elder brother last month because of a blood clot in his stent. He got liberated 5 months ago in Poland. We need to prove to the government that this works. Non-profit organizations like the CCSVI Clinic http://www.ccsviclinic.ca/ are tirelessly working to develop safer protocols with teams of world renowned surgeons even though they are feeling the negative pressure from you know who. This Atlanta based Organization has started Clinical Trials for CCSVI and we need to support these groups because they are our only hope to fight for the truth. Without the valuable data that they are collecting offshore, the procedures will not be allowed here, in our own countries.

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  16. It is estimated that the failure rate of the “liberation therapy” may be 50% or higher, even through the most experienced surgeons in Poland & Albany. As more people receive the therapy there is growing concern amongst patients that http://www.ccsviclinic.ca/?p=765 the procedure needs to include a post-procedure protocol that is more effective than simply releasing the patient from the hospital within a day.

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