Tuesday, May 4, 2010

CCSVI in Arizona

Hi Again Everyone.
I have received numerous emails today regarding treatment in AZ. Don't worry everyone I am staying on top of the Dr.s and their nurses. I spoke with my Dr.s today, and here is where we stand. It is going to take at least a month to get set up to treat the masses of people who not only want but need this procedure. Yesterday was the 1st of many meeting to come. What I got today was they are all on board, but they are still determining cost for patients that have to pay out of pocket ie Canadians, if they will need all out of state patients to first be seen by my local MS specialist, if out of state patients need to come 2 times once to have doppler and meet MS specialist and another for procedure, as well as getting government apprvol to treat as a vasicular problem. So as you can see it cant get done in one day of meetings, although I wish for all of you it could.

So here is what they have asked me to do (because I wanted to help) I am going to be taking a list of people who want to come to AZ for treatment. I know I have spoken with so many of you but I will need all of you to email me at tisamccay@gmail.com with your name first and last name contact info IE mobile number and email. So I am sure you are all like where does this put us? It puts you on the list. The very first list that I will be emailing to the Dr directly as soon as he is open to treat. I am make the list and going over it with my MS specialist. So even if you have already contacted my Dr. please still send me your info. They are so busy trying to make this work, that they said this is what I could do to help. So I hope that you find joy in knowing you will be on the 1st list of people to be treated once they get the go ahead. Any questions please email me or comment on this post, as my FB is getting overloaded.

As far as how I am feeling?? Pretty good except for the fact that I want all of you to get your liberation ASAP. It sucks that it takes so much time and so many different approvals. However a month or two is not that long when some of you have been waiting 20 or 30 yrs right. I hope you are all staying positive and praying with me that this will happen sooner than later.

Also when I spoke with my MS specialist who is a part of this he told me that my leg cramps are from my spinal lesion, and they have nothing to do with the liberation. He also told me I have no new lesions knock on wood. Thanks for reading, Tisa

5 comments:

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  3. Got rid of your info Teresa :)

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  4. Brendie Barrineau-FryMay 24, 2010 at 2:18 PM

    Thank you Tisa, for your blog!!! You have given me a whole new high for life. I am sooo excited to get this going. I emailed you my info!
    Brendie

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  5. I am excited too! I will be so happy when you all get treated. It is truely my pleasure.

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