Monday, June 14, 2010

Update on 50 days post Liberation and NO STENTS PLEASE

Hello Everyone,

I just wanted to write and tell you all how I am feeling. In one Word GREAT!!
As I last told you at 30 days post liberation, my left vein closed slightly, but I cant tell. I truly feel as though my body is healing itself. I also truly believe that CCSVI is one of the main reasons. The other being God. He has answered my prayers!

I have a 60 day post check up a week from tomorrow. so the 29th. I will first see my Dr. who performed the Liberation, and then go immediately to my MS Dr. who will be performing another MRI to see if my lesions are healing and to make sure there is no evidence of new disease! So I will tell you how that goes.

I also wanted to touch on one thing; Stents. A lot of you are not aware of the risks of using stints in the veins. Stents were made for arteries, which are way bigger and thicker than veins. So if a Dr. wants to put a stent in your jugular JUST say No! There is a high risk that the stint can move, and it has happened to 2 patients at Standford. Dr. Dake who originally used stints to treat CCSVI is no longer recommending that they be used.

My Dr. ( who performed CCSVI) was one of the Dr.s who invented the original stint. He is working on developing a stint that will work in veins. But for now he will only use angioplasty to open blocked veins. Which is much safer as of now. Yes you have a 50% chance that you veins will close back up, and you will have to have another angioplasty. But it is better than risking the stint migrating into your heart as it did with one Standford patient. Also one last note on stents; you have to take Plavix and other blood thinners for the REST OF YOUR LIFE!!! To keep the blood from clotting around the stint. SO NO STENTS!!! NOT UNTIL THERE IS ONE FOR THE VEIN!! Thanks T

8 comments:

  1. Tisa, I am so happy you are feeling so good!
    I am one of Dr. Dake's patients with STENTS. I was only aware of one person, Rad, who had a stent migrate. Are you sure your info is accurate? Also, we are not on blood thinners for life. I am 8 months post treatment and I only take a baby asprin each day now. Dr. Dake is very highly trained and all of us who were treated at Stanford trust him. He has also developed STENTS and has used them for many, many years.
    There is much to learn about treating CCSVI still. Dr. Simka in Poland has had great success with the patients he used stents in. Is angioplasty safer right now, I'm sure it is, but not worrying about restenosis is a huge benefit!!!!
    But this is not a fight about stents, it is a fight to get all people with MS tested and treated. At this time treatment is experimental. The risks do not outweigh the benefits in my opinion. I have regained my life as have you!
    Be well!!!

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  2. Please see my new post note to patients with stents. And the spell check on the blog automaticlly changes stents to stints. That is why they are spelled like that.

    Dr. Dake is an amazing Dr. He has helped my Dr. so much. I have nothing against him. ALl I am trying to say is that he does not reccomend stents be used until a new one is devolped. That is what he told my Dr.

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  3. Hi Tisa
    Glad it work for you and i hope you do great, and i agree stents is not recommended. But you should have known it is a mortal sin to report anything negative about CCSVI, no matter how small, and please do not make spelling mistakes, as those that believe it is the cure a perfect, and highly educated. They have all acquired a honorry Dr degree because they learned about CCSVI fro a bunch of idiotds. They do not make spelling mistakes at all.

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  4. No we never make spelling mistakes and we are all geniuses, but you "fro" sure make them! By the way, google the words "sour grapes" since you're obviously feeling slighted by CCSVI somehow. It's ok, we'll just keep doing it despite our serious lack of education and make sure we all become enlightened when you prove to us that the junk we've been injecting, and getting worse on, is really great and we are all just suffering from psychosomatic MS. Oh, and I notice you're posting as anonymous; wussy.

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  5. @Anonymous - even for the sarcasm that I think you are writing, hating on the girl because of grammatical errors while your grammar isn't much better....nice! Love the trolls.

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  6. Alright Everyone, I made this blog as a positive thing!! To help people. It is not a forum!! I am happy to hear comments and opinions on what I write. I can not approve these kinds of comments anymore. I did this time so that I could tell you all, this is a positive blog get all the negative energy out of here thanks Tisa

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  7. NO NEED FOR ANYONE SO CRITICAL ON ONES SPELLING. DON'T TAKE A ROCET SCIENTIST TO KNOW HOW TO SPELL. FOR SOME OF US WITH MS HAVE COGNITIVE ISSUES AND BEING NEGATIVE DO NOT HELP. THIS IS SUPPOSE TO BE POSITIVE FOR ALL OF US NOT CRITICAL. SO LIGHTEN UP.

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  8. Tisa I love your positive blog and really appreciate that you aren't keeping argumentative comments!

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