Hey Everyone, I went to my Dr. today, I had another Doppler ultra sound and veins stayed open without stents. It has been 60 days since my Liberation! I also went to my MS Dr. today and he told me that the 3 lesions on my brain were gone!! It was only Feb. when I had 3 active lesions on my brain and one on my spine. The one on my spine is en active and appears to be healing. My MS Dr. told me if he saw this MRI for the first time with none of my history he would say I don't have MS. He told me I am in remission!!!! I never did take the MS drugs and he told I won't have to. He even told me I don't need to see him anymore.
CCSVI DOES WORK!!! AND SO DO PRAYERS!!!! Thank you God and CCSVI.
I am so happy tears are rolling down my face.
I can't wait for all of you to feel Liberated. And you have to believe that your lesions all heal. I told myself everyday and asked God everyday to make my lesions go away. And they did!!!!!!!!!!!!!!!!!!!!!
Tuesday, June 29, 2010
Saturday, June 26, 2010
Bionic Band
Hi Everyone, So I have been wearing my bionic band for 24 hrs now, and the results are amazing! I have increased energy, better balance, and less joint pain!! If you have MS and are experiencing any of the symptoms of fatigue, dizziness, loss of balance, or pain, I would try this band. They are not too expensive and seem to really work. here is the link again
http://tisaoneill.mybionicfamily.com/Web/us/en/home.dhtml
They Start at $55.00
http://tisaoneill.mybionicfamily.com/Web/us/en/home.dhtml
They Start at $55.00
Friday, June 25, 2010
Amazing Balance Bands Improve balance
Bionic Band® Original is imprinted at a frequency of 7-9 Hz. This is the normal frequency of your body. Consumers who wear the Bionic Band® Original will feel an increase in energy, balance, and strength. Many of our customers tell us that the Bionic Band® Original also relieved their pain from arthritis, carpal tunnel syndrome, back and joint pain, and much more. The Bionic Band® Original comes in four sizes and various colors and has a Lifetime warranty on the imprinted material. See your distributor for more information.
More Information
Q: Does the Bionic Band® Original come in different sizes and colors?
A: Yes, The Bionic Band® Original comes in four sizes: small, medium, large, and extra large. It comes four colors: black, tan, blue, and pink.
Q: Can I wear the Bionic Band® on my ankle?
A: Yes! In fact, many of our customers wear their band on their ankle with great results!
Q: I have heard that the Bionic Band® will help with muscle aches and pains. Is this true?
A: Although no major studies have been completed in regards to this subject, we are having tremendous results with many of our customers. Check out our testimonial page and you can read them for yourself!
Q: How long is the warranty?
A: We offer 30-day money back guarantee and a lifetime warranty on the imprinted material.Buy Now
Bionic Band® Sport
Energy boost that you can feel.
Sport
Bionic Band® Sport is imprinted at higher frequency that is between 10 and 14 Hz. The Bionic Band® Sport gives your body an energy boost that you can feel.
More Information
Q: Where is the metal?
A: The Bionic Band® Sport does not have a metal tab like the Bionic Band® Original. The Bionic Band® Sport is made from a highly mineralized silicone, which holds the frequency similar to the metal tab.
Q: Will they have the same "Lifetime" warranty as the Bionic Band® Original?
A: No, since they are made from silicone, we warranty the Bionic Band® Sport for one year.
Q: How will they affect my sleep?
A: We do not recommend that you wear the Bionic Band® Sport while you sleep. When you are a sleep your brainwaves work at a lower frequency, the Bionic Band® Sport will keep you from reaching this lower frequency required for a good nights sleep.
Q: Does the Bionic Band® Sport work for pain?
A: Although no major studies have been completed in regards to this subject, The Bionic Band® Sport does not work like the Bionic Band® Original, and in most cases may not ease aches and pains.
Buy Now
Bionic Band® Stainless Steel Bracelet
Immediate and dramatic increase in energy.
Steel Bracelet
Bionic Stainless Steel Bracelets are attractive pieces of high quality jewelry that have been imprinted with a frequency between 7 and 9 Hz. Consumers who wear the Bionic Bracelet will feel an immediate and dramatic increase in energy, balance, and strength.
More Information
Q: Do these bracelets work like the Bionic Band® Original?
A: Yes! The Bionic Bracelets works exactly like our Bionic Band® Original.
Q: Does the Bionic Bracelet have to be snug like the Bionic Band® Original?
A: No. The entire Bionic Bracelet has been imprinted, so it does not matter if you wear it snug or loose.
Q: What kind of warranty does the Bionic Bracelet come with?
A: Just like the Bionic Band® Original, these come with a 30-day money back guarantee, and a lifetime warranty on the imprinted material.
Q: Does the Bionic Bracelet work for pain relief too?
A: Although no major studies have been completed in regards to this subject, we are having tremendous results with many of our customers. Check out our testimonial page and you can read them for yourself!
Q: What if it is too large for me?
A: You can take Bionic Bracelet to any jeweler and they can size it for you.
Q: Can I get the Bionic Bracelets wet?
A: YES! Most people who wear the Bionic Bracelet never take them off. You can wear them in the shower or pool without worry.
Buy Now
Bionic Band® Stainless Steel Pendant
Immediate and dramatic increase in balance, and strength.
Stainless Steel Pendant
Bionic Stainless Steel Pendants are attractive pieces of high quality jewelry that have been imprinted with a frequency between 7 and 9 Hz. Consumers who wear the Bionic Pendant will feel an immediate and dramatic increase in energy, balance, and strength.
More Information
Q: Do they work better than the Bionic Band® Original?
A: Some people say that they experienced better balance because the Bionic Pendant is centered on their body.
Q: What kind of warranty does Bionic Pendant carry?
A: Just like the Bionic Band® Original, these come with a 30-day money back guarantee, and a lifetime warranty on the imprinted material.
Q: Do they work for pain relief too?
A: Although no major studies have been completed in regards to this subject, we are having tremendous results with many of our customers. Check out our testimonial page and you can read them for yourself!
Q: Can I get the Bionic Pendants wet?
A: YES! Most people who wear them never take them off. You can wear them in the shower or pool without worry!
Buy Now
Bionic Band® Collar
Immediate and dramatic increase in energy.
Bionic Collar
The Bionic Collar is imprinted at the natural frequency that your pet’s body wants to resonate at, which is between 7 and 9Hz. Animals who wear the Bionic Collar will feel an immediate and dramatic increase in energy, balance, and strength.
More Information
Q: Do these collars work like the Bionic Band® Original?
A: Yes! The Bionic Collar works exactly like our Bionic Band® Original.
Q: What about my pet’s current collar?
A: The Bionic Collar is not meant to replace your pet’s current collar. It should be worn in addition to your pet’s current collar.
Q: What about the fur?
A: Many of our customers have told us that it may take an hour or two until you notice the impact of the Bionic Collar on your pet due to the fur.
Q: What kind of warranty does the Bionic Collar come with?
A: Just like the Bionic Band® Original, the Bionic Collar comes with a 30-day money back guarantee, and a lifetime warranty on the imprinted material.
Q: Does the Bionic Collar work for pain relief too?
A: Although no major studies have been completed in regards to this subject, we are having tremendous results with many of our customer’s pets.
Q: How do I care for the Bionic Collar?
A: We designed the Bionic Collar to be simple in design but rugged in construction. However, as time passes, the collar will naturally become dirty. We recommend washing the collar in warm soapy water with a mild detergent and letting it air dry.
Buy Now
AQ: How long is the warranty?
A: We offer 30-day money back guarantee and a lifetime warranty on the imprinted material.Buy Now
Bionic Band® Sport
Energy boost that you can feel.
Sport
Bionic Band® Sport is imprinted at higher frequency that is between 10 and 14 Hz. The Bionic Band® Sport gives your body an energy boost that you can feel.
More Information
Q: Where is the metal?
A: The Bionic Band® Sport does not have a metal tab like the Bionic Band® Original. The Bionic Band® Sport is made from a highly mineralized silicone, which holds the frequency similar to the metal tab.
Q: Will they have the same "Lifetime" warranty as the Bionic Band® Original?
A: No, since they are made from silicone, we warranty the Bionic Band® Sport for one year.
Q: How will they affect my sleep?
A: We do not recommend that you wear the Bionic Band® Sport while you sleep. When you are a sleep your brainwaves work at a lower frequency, the Bionic Band® Sport will keep you from reaching this lower frequency required for a good nights sleep.
Q: Does the Bionic Band® Sport work for pain?
A: Although no major studies have been completed in regards to this subject, The Bionic Band® Sport does not work like the Bionic Band® Original, and in most cases may not ease aches and pains.
Buy Now
Bionic Band® Stainless Steel Bracelet
Immediate and dramatic increase in energy.
Steel Bracelet
Bionic Stainless Steel Bracelets are attractive pieces of high quality jewelry that have been imprinted with a frequency between 7 and 9 Hz. Consumers who wear the Bionic Bracelet will feel an immediate and dramatic increase in energy, balance, and strength.
More Information
.
Q: What kind of warranty does the Bionic Bracelet come with?
A: Just like the Bionic Band® Original, these come with a 30-day money back guarantee, and a lifetime warranty on the imprinted material.
Q: Does the Bionic Bracelet work for pain relief too?
A: Although no major studies have been completed in regards to this subject, we are having tremendous results with many of our customers. Check out our testimonial page and you can read them for yourself!
Buy Now at the link below. Just started wearing mine today and I think results are amazing
http://tisaoneill.mybionicfamily.com/Web/us/en/home.dhtml
More Information
Q: Does the Bionic Band® Original come in different sizes and colors?
A: Yes, The Bionic Band® Original comes in four sizes: small, medium, large, and extra large. It comes four colors: black, tan, blue, and pink.
Q: Can I wear the Bionic Band® on my ankle?
A: Yes! In fact, many of our customers wear their band on their ankle with great results!
Q: I have heard that the Bionic Band® will help with muscle aches and pains. Is this true?
A: Although no major studies have been completed in regards to this subject, we are having tremendous results with many of our customers. Check out our testimonial page and you can read them for yourself!
Q: How long is the warranty?
A: We offer 30-day money back guarantee and a lifetime warranty on the imprinted material.Buy Now
Bionic Band® Sport
Energy boost that you can feel.
Sport
Bionic Band® Sport is imprinted at higher frequency that is between 10 and 14 Hz. The Bionic Band® Sport gives your body an energy boost that you can feel.
More Information
Q: Where is the metal?
A: The Bionic Band® Sport does not have a metal tab like the Bionic Band® Original. The Bionic Band® Sport is made from a highly mineralized silicone, which holds the frequency similar to the metal tab.
Q: Will they have the same "Lifetime" warranty as the Bionic Band® Original?
A: No, since they are made from silicone, we warranty the Bionic Band® Sport for one year.
Q: How will they affect my sleep?
A: We do not recommend that you wear the Bionic Band® Sport while you sleep. When you are a sleep your brainwaves work at a lower frequency, the Bionic Band® Sport will keep you from reaching this lower frequency required for a good nights sleep.
Q: Does the Bionic Band® Sport work for pain?
A: Although no major studies have been completed in regards to this subject, The Bionic Band® Sport does not work like the Bionic Band® Original, and in most cases may not ease aches and pains.
Buy Now
Bionic Band® Stainless Steel Bracelet
Immediate and dramatic increase in energy.
Steel Bracelet
Bionic Stainless Steel Bracelets are attractive pieces of high quality jewelry that have been imprinted with a frequency between 7 and 9 Hz. Consumers who wear the Bionic Bracelet will feel an immediate and dramatic increase in energy, balance, and strength.
More Information
Q: Do these bracelets work like the Bionic Band® Original?
A: Yes! The Bionic Bracelets works exactly like our Bionic Band® Original.
Q: Does the Bionic Bracelet have to be snug like the Bionic Band® Original?
A: No. The entire Bionic Bracelet has been imprinted, so it does not matter if you wear it snug or loose.
Q: What kind of warranty does the Bionic Bracelet come with?
A: Just like the Bionic Band® Original, these come with a 30-day money back guarantee, and a lifetime warranty on the imprinted material.
Q: Does the Bionic Bracelet work for pain relief too?
A: Although no major studies have been completed in regards to this subject, we are having tremendous results with many of our customers. Check out our testimonial page and you can read them for yourself!
Q: What if it is too large for me?
A: You can take Bionic Bracelet to any jeweler and they can size it for you.
Q: Can I get the Bionic Bracelets wet?
A: YES! Most people who wear the Bionic Bracelet never take them off. You can wear them in the shower or pool without worry.
Buy Now
Bionic Band® Stainless Steel Pendant
Immediate and dramatic increase in balance, and strength.
Stainless Steel Pendant
Bionic Stainless Steel Pendants are attractive pieces of high quality jewelry that have been imprinted with a frequency between 7 and 9 Hz. Consumers who wear the Bionic Pendant will feel an immediate and dramatic increase in energy, balance, and strength.
More Information
Q: Do they work better than the Bionic Band® Original?
A: Some people say that they experienced better balance because the Bionic Pendant is centered on their body.
Q: What kind of warranty does Bionic Pendant carry?
A: Just like the Bionic Band® Original, these come with a 30-day money back guarantee, and a lifetime warranty on the imprinted material.
Q: Do they work for pain relief too?
A: Although no major studies have been completed in regards to this subject, we are having tremendous results with many of our customers. Check out our testimonial page and you can read them for yourself!
Q: Can I get the Bionic Pendants wet?
A: YES! Most people who wear them never take them off. You can wear them in the shower or pool without worry!
Buy Now
Bionic Band® Collar
Immediate and dramatic increase in energy.
Bionic Collar
The Bionic Collar is imprinted at the natural frequency that your pet’s body wants to resonate at, which is between 7 and 9Hz. Animals who wear the Bionic Collar will feel an immediate and dramatic increase in energy, balance, and strength.
More Information
Q: Do these collars work like the Bionic Band® Original?
A: Yes! The Bionic Collar works exactly like our Bionic Band® Original.
Q: What about my pet’s current collar?
A: The Bionic Collar is not meant to replace your pet’s current collar. It should be worn in addition to your pet’s current collar.
Q: What about the fur?
A: Many of our customers have told us that it may take an hour or two until you notice the impact of the Bionic Collar on your pet due to the fur.
Q: What kind of warranty does the Bionic Collar come with?
A: Just like the Bionic Band® Original, the Bionic Collar comes with a 30-day money back guarantee, and a lifetime warranty on the imprinted material.
Q: Does the Bionic Collar work for pain relief too?
A: Although no major studies have been completed in regards to this subject, we are having tremendous results with many of our customer’s pets.
Q: How do I care for the Bionic Collar?
A: We designed the Bionic Collar to be simple in design but rugged in construction. However, as time passes, the collar will naturally become dirty. We recommend washing the collar in warm soapy water with a mild detergent and letting it air dry.
Buy Now
AQ: How long is the warranty?
A: We offer 30-day money back guarantee and a lifetime warranty on the imprinted material.Buy Now
Bionic Band® Sport
Energy boost that you can feel.
Sport
Bionic Band® Sport is imprinted at higher frequency that is between 10 and 14 Hz. The Bionic Band® Sport gives your body an energy boost that you can feel.
More Information
Q: Where is the metal?
A: The Bionic Band® Sport does not have a metal tab like the Bionic Band® Original. The Bionic Band® Sport is made from a highly mineralized silicone, which holds the frequency similar to the metal tab.
Q: Will they have the same "Lifetime" warranty as the Bionic Band® Original?
A: No, since they are made from silicone, we warranty the Bionic Band® Sport for one year.
Q: How will they affect my sleep?
A: We do not recommend that you wear the Bionic Band® Sport while you sleep. When you are a sleep your brainwaves work at a lower frequency, the Bionic Band® Sport will keep you from reaching this lower frequency required for a good nights sleep.
Q: Does the Bionic Band® Sport work for pain?
A: Although no major studies have been completed in regards to this subject, The Bionic Band® Sport does not work like the Bionic Band® Original, and in most cases may not ease aches and pains.
Buy Now
Bionic Band® Stainless Steel Bracelet
Immediate and dramatic increase in energy.
Steel Bracelet
Bionic Stainless Steel Bracelets are attractive pieces of high quality jewelry that have been imprinted with a frequency between 7 and 9 Hz. Consumers who wear the Bionic Bracelet will feel an immediate and dramatic increase in energy, balance, and strength.
More Information
.
Q: What kind of warranty does the Bionic Bracelet come with?
A: Just like the Bionic Band® Original, these come with a 30-day money back guarantee, and a lifetime warranty on the imprinted material.
Q: Does the Bionic Bracelet work for pain relief too?
A: Although no major studies have been completed in regards to this subject, we are having tremendous results with many of our customers. Check out our testimonial page and you can read them for yourself!
Buy Now at the link below. Just started wearing mine today and I think results are amazing
http://tisaoneill.mybionicfamily.com/Web/us/en/home.dhtml
Thursday, June 17, 2010
Treatment for CCSVI in Arizona
Hey Everyone, Great news, You may now contact Teresa (my Dr. who performs CCSVI in Phoenix, Arizona nurse) directly.
If you are interested in getting on the waiting list for treatment please email
TCapriotti@azheart.com
Just email your name phone and email to her and she will call you. Thanks Tisa
If you are interested in getting on the waiting list for treatment please email
TCapriotti@azheart.com
Just email your name phone and email to her and she will call you. Thanks Tisa
Monday, June 14, 2010
Note to Patients with Stents
I am not trying to say stents are horrible. Nor am I trying to say anything bad about Dr. Dake. I have a lot of respect for Dr. Dake. All I am saying is that now Dr. Dake has told my Dr. not to use stents until they can develop one for the veins. I am sorry if my information was wrong about plavix. That is what I was told. But still baby aspirin is a blood thinner and you do have to take it for the rest of your life. It is also impossible to remove the stent, it is there for the rest of your life as well.
There is also the azygos vein, where stints can be placed. I am just referring to the jugulars right now. I am also referring to what Zambonni said about Not using stints until there is one that is developed for the vein. Thanks
There is also the azygos vein, where stints can be placed. I am just referring to the jugulars right now. I am also referring to what Zambonni said about Not using stints until there is one that is developed for the vein. Thanks
Update on 50 days post Liberation and NO STENTS PLEASE
Hello Everyone,
I just wanted to write and tell you all how I am feeling. In one Word GREAT!!
As I last told you at 30 days post liberation, my left vein closed slightly, but I cant tell. I truly feel as though my body is healing itself. I also truly believe that CCSVI is one of the main reasons. The other being God. He has answered my prayers!
I have a 60 day post check up a week from tomorrow. so the 29th. I will first see my Dr. who performed the Liberation, and then go immediately to my MS Dr. who will be performing another MRI to see if my lesions are healing and to make sure there is no evidence of new disease! So I will tell you how that goes.
I also wanted to touch on one thing; Stents. A lot of you are not aware of the risks of using stints in the veins. Stents were made for arteries, which are way bigger and thicker than veins. So if a Dr. wants to put a stent in your jugular JUST say No! There is a high risk that the stint can move, and it has happened to 2 patients at Standford. Dr. Dake who originally used stints to treat CCSVI is no longer recommending that they be used.
My Dr. ( who performed CCSVI) was one of the Dr.s who invented the original stint. He is working on developing a stint that will work in veins. But for now he will only use angioplasty to open blocked veins. Which is much safer as of now. Yes you have a 50% chance that you veins will close back up, and you will have to have another angioplasty. But it is better than risking the stint migrating into your heart as it did with one Standford patient. Also one last note on stents; you have to take Plavix and other blood thinners for the REST OF YOUR LIFE!!! To keep the blood from clotting around the stint. SO NO STENTS!!! NOT UNTIL THERE IS ONE FOR THE VEIN!! Thanks T
I just wanted to write and tell you all how I am feeling. In one Word GREAT!!
As I last told you at 30 days post liberation, my left vein closed slightly, but I cant tell. I truly feel as though my body is healing itself. I also truly believe that CCSVI is one of the main reasons. The other being God. He has answered my prayers!
I have a 60 day post check up a week from tomorrow. so the 29th. I will first see my Dr. who performed the Liberation, and then go immediately to my MS Dr. who will be performing another MRI to see if my lesions are healing and to make sure there is no evidence of new disease! So I will tell you how that goes.
I also wanted to touch on one thing; Stents. A lot of you are not aware of the risks of using stints in the veins. Stents were made for arteries, which are way bigger and thicker than veins. So if a Dr. wants to put a stent in your jugular JUST say No! There is a high risk that the stint can move, and it has happened to 2 patients at Standford. Dr. Dake who originally used stints to treat CCSVI is no longer recommending that they be used.
My Dr. ( who performed CCSVI) was one of the Dr.s who invented the original stint. He is working on developing a stint that will work in veins. But for now he will only use angioplasty to open blocked veins. Which is much safer as of now. Yes you have a 50% chance that you veins will close back up, and you will have to have another angioplasty. But it is better than risking the stint migrating into your heart as it did with one Standford patient. Also one last note on stents; you have to take Plavix and other blood thinners for the REST OF YOUR LIFE!!! To keep the blood from clotting around the stint. SO NO STENTS!!! NOT UNTIL THERE IS ONE FOR THE VEIN!! Thanks T
Thursday, June 10, 2010
Monday, June 7, 2010
What I posted earlier with links to translate in English
http://translate.google.com/translate?js=y&prev=_t&hl=en&ie=UTF-8&layout=1&eotf=1&u=http%3A%2F%2Ffree-news.org%2Fjacamp03.htm&sl=es&tl=en
http://www.thisisms.com/ftopic-10649-0-days0-orderasc-.html
http://www.thisisms.com/ftopic-10649-0-days0-orderasc-.html
Friday, June 4, 2010
Mis Diagnosed with MS?? A MUST READ
Cerebrovasculas Symptoms are just like the one of MS. What does this long word mean? Blocked or narrowed Veins. Which Veins? the jugulars. Zambonni has found that only 60% of people with MS have blocked veins. My thoughts those 60% are mis diagnosed.
Symptoms of Cerebrovascular Conditions IntroSymptomsTypesCausesTestsPrognosisTreatmentMisdiagnosisDeathsVideosContents
1.Cerebrovascular Conditions: Introduction
2.List of Symptoms of Cerebrovascular Conditions
3.Tests to Confirm Diagnosis
4.Home Diagnostic Testing
5.Failure to Diagnose
6.Alternative Diagnoses
7.Misdiagnosis information
8.More about Symptoms
9.Medical articles
Related Cerebrovascular Conditions InfoVideos about Cerebrovascular ConditionsHelping Stroke RecoveryWatch VideoTreating StrokesWatch Video Related Pages1.Cerebrovascular Conditions: Introduction
2.List of Symptoms of Cerebrovascular Conditions
3.Tests to Confirm Diagnosis
4.Home Diagnostic Testing
5.Failure to Diagnose
6.Alternative Diagnoses
7.Misdiagnosis information
8.More about Symptoms
9.Medical articles
Symptoms of Cerebrovascular ConditionsThe list of signs and symptoms mentioned in various sources for Cerebrovascular Conditions includes the 21 symptoms listed below:
•Symptoms can vary depending on the underlying condition
•Vision changes
•Difficulty speaking
•Slurred speech
•Reading or writing difficulties
•Drooling
•Difficulty swallowing
•Numbness
•Tingling sensations
•Weakness in limbs or face
•Paralysis in limbs or face
•Memory problems
•Balance problems
•Coordination problems
•Changes in personality
•Mood changes - e.g. depression
•Sleepiness
•Fatigue
•Altered state of consciousness
•Inability to control eye movements
•Headache - can be severe
•more information...»
Research symptoms & diagnosis of Cerebrovascular Conditions:
•Overview -- Cerebrovascular Conditions
•Diagnostic Tests for Cerebrovascular Conditions
•Home Diagnostic Testing
Symptoms of Cerebrovascular Conditions IntroSymptomsTypesCausesTestsPrognosisTreatmentMisdiagnosisDeathsVideosContents
1.Cerebrovascular Conditions: Introduction
2.List of Symptoms of Cerebrovascular Conditions
3.Tests to Confirm Diagnosis
4.Home Diagnostic Testing
5.Failure to Diagnose
6.Alternative Diagnoses
7.Misdiagnosis information
8.More about Symptoms
9.Medical articles
Related Cerebrovascular Conditions InfoVideos about Cerebrovascular ConditionsHelping Stroke RecoveryWatch VideoTreating StrokesWatch Video Related Pages1.Cerebrovascular Conditions: Introduction
2.List of Symptoms of Cerebrovascular Conditions
3.Tests to Confirm Diagnosis
4.Home Diagnostic Testing
5.Failure to Diagnose
6.Alternative Diagnoses
7.Misdiagnosis information
8.More about Symptoms
9.Medical articles
Symptoms of Cerebrovascular ConditionsThe list of signs and symptoms mentioned in various sources for Cerebrovascular Conditions includes the 21 symptoms listed below:
•Symptoms can vary depending on the underlying condition
•Vision changes
•Difficulty speaking
•Slurred speech
•Reading or writing difficulties
•Drooling
•Difficulty swallowing
•Numbness
•Tingling sensations
•Weakness in limbs or face
•Paralysis in limbs or face
•Memory problems
•Balance problems
•Coordination problems
•Changes in personality
•Mood changes - e.g. depression
•Sleepiness
•Fatigue
•Altered state of consciousness
•Inability to control eye movements
•Headache - can be severe
•more information...»
Research symptoms & diagnosis of Cerebrovascular Conditions:
•Overview -- Cerebrovascular Conditions
•Diagnostic Tests for Cerebrovascular Conditions
•Home Diagnostic Testing
Amazing Proof that MS drugs do not work.
MS drug trial 'a fiasco' – and NHS paid for it
By Jeremy Laurance, Health Editor
Friday, 4 June 2010
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Multiple sclerosis, a chronic disease, may take 40 years to run its course. In developing drugs to slow its progression, doctors have used brain scans to show lesions (seen as red and yellow in the MRI scan)
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The most expensive publicly funded drug trial in history is condemned today as a "fiasco" which has wasted hundreds of millions of NHS cash and raised fresh concerns about the influence of the pharmaceutical industry.
The scheme involved four drugs for multiple sclerosis launched in the 1990s which were hailed as the first treatment to delay progression of the disabling neurological condition that affects 80,000 people in the UK.
It was set up in 2002 after the National Institute for Clinical Excellence (Nice) unexpectedly ruled that the drugs were not cost effective and should not be used on the NHS. To head off opposition from patient groups and the pharmaceutical industry, the Department of Health established the largest NHS "patient access scheme", to provide patients with the drugs, costing an average £8,000 a year, on the understanding that if they turned out to be less effective than expected, the drug companies would reduce the price.
Related articles
•Christopher McCabe: What lessons can we learn from this?
Search the news archive for more stories
The first report on the outcome was due after two years but was not published until last December, seven years later. It showed that the drugs failed to delay the onset of disability in patients – defined as walking with a stick or using a wheelchair – and may even have hastened it. On that basis, the drug companies would have had to pay the NHS to use them to make them cost effective.
Despite this finding, the price was not reduced and the scientific advisory group monitoring the scheme advised that "further follow up and analyses" were required. It said that disability may yet improve, the disease may have become more aggressive and the measure of disability used may have underestimated benefit. There were 5,583 patients in the scheme at a cost to the NHS of around £50m a year, amounting to £350m over seven years to 2009. The Multiple Sclerosis Society said twice as many patients were using the drugs outside the trial, implying a total NHS cost of £700m for a treatment that does not work.
In a series of articles in today's British Medical Journal, experts criticise the scheme. James Raftery, professor of health technology assessment at the University of Southampton and an adviser to Nice, said the scientific advisory group included representatives from the four drug companies, two MS groups, and the neurologists treating patients, all of whom had lobbied for the continued use of the drugs on the NHS.
"The independence of this group is questionable," he said. "Monitoring and evaluation of outcomes must be independent. Transparency is essential, involving annual reports, access to data, and rights to publish. Any of these might have helped avoid the current fiasco."
Professor Christopher McCabe, head of health economics at the University of Leeds, writing with colleagues in the BMJ, said: "None of the reasons for delaying the price review withstand critical assessment." Professor McCabe told The Independent: "We should be asking questions about paying for these drugs. In terms of disability avoidance, the evidence is not there."
Alastair Compston, professor of neurology at the University of Cambridge, defended the scheme. He said that despite a disappointing outcome, the scheme had "advanced the situation for people with multiple sclerosis" by improving understanding and care of the disease. Neil Scolding, professor of neurosciences at the University of Bristol, said the proportion of British patients treated with drugs (10-15 per cent) was tiny compared to France and Germany (40-50 per cent). He said the scheme had also led to the appointment of 250 multiple sclerosis nurses.
"[Though] expensive and flawed, if it turns out to have been no better than a clever wooden horse, then the army of MS healthcare specialists it delivered may make it more than worthwhile," he wrote. The MS Society claimed success for the scheme up to 2007 but after publication of the results last December, withdrew its support.
MS: why the drugs don't work
Multiple sclerosis is a chronic disease. It may take 40 years to run its course. In developing drugs to slow its progression, doctors have used brain scans to show lesions which the drugs appeared to prevent, and gave quicker results. Some experts thought the lesions were the disease but little effort was made to check. But preventing lesion formation does not prevent disability caused by the condition. The drugs deal with the lesions, not the disease.
Jeremy Laurance
By Jeremy Laurance, Health Editor
Friday, 4 June 2010
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Multiple sclerosis, a chronic disease, may take 40 years to run its course. In developing drugs to slow its progression, doctors have used brain scans to show lesions (seen as red and yellow in the MRI scan)
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The most expensive publicly funded drug trial in history is condemned today as a "fiasco" which has wasted hundreds of millions of NHS cash and raised fresh concerns about the influence of the pharmaceutical industry.
The scheme involved four drugs for multiple sclerosis launched in the 1990s which were hailed as the first treatment to delay progression of the disabling neurological condition that affects 80,000 people in the UK.
It was set up in 2002 after the National Institute for Clinical Excellence (Nice) unexpectedly ruled that the drugs were not cost effective and should not be used on the NHS. To head off opposition from patient groups and the pharmaceutical industry, the Department of Health established the largest NHS "patient access scheme", to provide patients with the drugs, costing an average £8,000 a year, on the understanding that if they turned out to be less effective than expected, the drug companies would reduce the price.
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The first report on the outcome was due after two years but was not published until last December, seven years later. It showed that the drugs failed to delay the onset of disability in patients – defined as walking with a stick or using a wheelchair – and may even have hastened it. On that basis, the drug companies would have had to pay the NHS to use them to make them cost effective.
Despite this finding, the price was not reduced and the scientific advisory group monitoring the scheme advised that "further follow up and analyses" were required. It said that disability may yet improve, the disease may have become more aggressive and the measure of disability used may have underestimated benefit. There were 5,583 patients in the scheme at a cost to the NHS of around £50m a year, amounting to £350m over seven years to 2009. The Multiple Sclerosis Society said twice as many patients were using the drugs outside the trial, implying a total NHS cost of £700m for a treatment that does not work.
In a series of articles in today's British Medical Journal, experts criticise the scheme. James Raftery, professor of health technology assessment at the University of Southampton and an adviser to Nice, said the scientific advisory group included representatives from the four drug companies, two MS groups, and the neurologists treating patients, all of whom had lobbied for the continued use of the drugs on the NHS.
"The independence of this group is questionable," he said. "Monitoring and evaluation of outcomes must be independent. Transparency is essential, involving annual reports, access to data, and rights to publish. Any of these might have helped avoid the current fiasco."
Professor Christopher McCabe, head of health economics at the University of Leeds, writing with colleagues in the BMJ, said: "None of the reasons for delaying the price review withstand critical assessment." Professor McCabe told The Independent: "We should be asking questions about paying for these drugs. In terms of disability avoidance, the evidence is not there."
Alastair Compston, professor of neurology at the University of Cambridge, defended the scheme. He said that despite a disappointing outcome, the scheme had "advanced the situation for people with multiple sclerosis" by improving understanding and care of the disease. Neil Scolding, professor of neurosciences at the University of Bristol, said the proportion of British patients treated with drugs (10-15 per cent) was tiny compared to France and Germany (40-50 per cent). He said the scheme had also led to the appointment of 250 multiple sclerosis nurses.
"[Though] expensive and flawed, if it turns out to have been no better than a clever wooden horse, then the army of MS healthcare specialists it delivered may make it more than worthwhile," he wrote. The MS Society claimed success for the scheme up to 2007 but after publication of the results last December, withdrew its support.
MS: why the drugs don't work
Multiple sclerosis is a chronic disease. It may take 40 years to run its course. In developing drugs to slow its progression, doctors have used brain scans to show lesions which the drugs appeared to prevent, and gave quicker results. Some experts thought the lesions were the disease but little effort was made to check. But preventing lesion formation does not prevent disability caused by the condition. The drugs deal with the lesions, not the disease.
Jeremy Laurance
Wednesday, June 2, 2010
How to Get on waiting list for treatment of CCSVI
How can you get treated for CCSVI? In the US
Email tisamccay@gmail.com
What to include? Name, phone number, and email. That is it.
Then what? My Dr. 's nurse Teresa will contact you with in 3 weeks.
Do I know the cost? no Teresa will answer that.
Do they take insurance? Ask Teresa
I do not work for them. I am just trying to help you guys.
Does it hurt? Yes for about 10mins of the procedure and 1-2 weeks after you are sore.
How long does it take? If you have an appt with my Dr. for MRV and Doppler on Tuesday and veins are compromised, you will be treated via angioplasty no stints the next day or Wed. The actual procedure is about 2 hours. Then you lay in recovery for about 4 hours.
Theses are common questions I keep getting asked so here are the answers. Thanks T
When will they begin treatment? After the 4th of July. Keep in mind there are already 100+ people on the list so it may take up to 8 months until you actually get treated.
Have you had treatment meaning me myself Tisa? Yes that is why I started this blog. I was the first one they treated.
Email tisamccay@gmail.com
What to include? Name, phone number, and email. That is it.
Then what? My Dr. 's nurse Teresa will contact you with in 3 weeks.
Do I know the cost? no Teresa will answer that.
Do they take insurance? Ask Teresa
I do not work for them. I am just trying to help you guys.
Does it hurt? Yes for about 10mins of the procedure and 1-2 weeks after you are sore.
How long does it take? If you have an appt with my Dr. for MRV and Doppler on Tuesday and veins are compromised, you will be treated via angioplasty no stints the next day or Wed. The actual procedure is about 2 hours. Then you lay in recovery for about 4 hours.
Theses are common questions I keep getting asked so here are the answers. Thanks T
When will they begin treatment? After the 4th of July. Keep in mind there are already 100+ people on the list so it may take up to 8 months until you actually get treated.
Have you had treatment meaning me myself Tisa? Yes that is why I started this blog. I was the first one they treated.
Tuesday, June 1, 2010
Hey Everyone, I have a couple of questions for you.
First: How often do you get sick? Since I have had MS I never get sick. I haven't had a cold or flu or anything for years. Then immediately after CCSVI, I got strep throat. And two weeks after that the stomach flu. I think that that is a good sign. Only because the way MS is explained to me our immune systems over work, so unless we take the MS drugs our bodies over fight common sickness. So if you can please comment your answers about getting sick that would be great so I can see if I am right or wrong.
Second: How many of you have dizziness as part of your MS symptoms? I hear so much about people having trouble with walking, blurred vision, blindness, numb feet or hands, and closing of the throat. I have had numb feet (during a flare up) dizziness to the point where the entire room spins, blurred vision, closing throat, and aches and pains. When you are in remission do you have little attacks of your relapsing symptoms?
My Dr. told me that every now and then I would feel tiny attacks but it did not mean I was having a relapse. SO, do all of you have tiny attacks that last for 5 mins or so? And then go away? I want to know more about my disease from the people who know best. Not Dr.s but the ones who suffer from this.
So please answer in the comment section, or if you want to email me tisamccay@gmail.com Thanks T
First: How often do you get sick? Since I have had MS I never get sick. I haven't had a cold or flu or anything for years. Then immediately after CCSVI, I got strep throat. And two weeks after that the stomach flu. I think that that is a good sign. Only because the way MS is explained to me our immune systems over work, so unless we take the MS drugs our bodies over fight common sickness. So if you can please comment your answers about getting sick that would be great so I can see if I am right or wrong.
Second: How many of you have dizziness as part of your MS symptoms? I hear so much about people having trouble with walking, blurred vision, blindness, numb feet or hands, and closing of the throat. I have had numb feet (during a flare up) dizziness to the point where the entire room spins, blurred vision, closing throat, and aches and pains. When you are in remission do you have little attacks of your relapsing symptoms?
My Dr. told me that every now and then I would feel tiny attacks but it did not mean I was having a relapse. SO, do all of you have tiny attacks that last for 5 mins or so? And then go away? I want to know more about my disease from the people who know best. Not Dr.s but the ones who suffer from this.
So please answer in the comment section, or if you want to email me tisamccay@gmail.com Thanks T
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