I just got off the phone with Teresa. I am here to update you so she doesn't have to make 313 phone calls. Although she is more than happy to speak with you via email. She told me to tell you all that if you want to contact her with ANY questions emailing her will get you a faster response. So here is the most up to date information regarding Venous impairment Procedure. OR V.I.P. That is what they have named it for certain reasons. ( keeping the doors open to treat all of you)
When will they start?
I know all of you must be feeling like this is taking forever. And I'm with you. It is. But they are just trying to go about it in the right way so that they will not get shut down, and insurance will cover treatment. New Date: Aug. 1st. I said Teresa is this the final date or are you guys going to push it back again? She said this is the final date.
What is taking so Long? And I want to curse when I say that but this is a positive blog so I wont. I just want you all to know I am as upset and inpatient as you are.
So back to the question. They are talking with different insurance companies, and are almost positive they can get insurance to cover your treatment. That is for US citizens only. That is a HUGE deal guys. You will not have to come up with thousands of dollars out of pocket. So :) for that.
Extra Notes from Teresa:
This is NOT a Randomized study. Everyone with compromised veins will be treated. No placebo.
You will have to have a CTV and venous duplex ultra sound of bilateral, internal jugular vein and vertebral veins. As well as the azygos vein which will be viewed during veinogram. In words we all understand, CTV Cat scan of veins. They have switched from MRV to CTV because it is more detailed. Duplex Ultra sound of all the veins listed above. New name for Doppler but the same thing.
ALL PATIENT MUST UNDERGO THESE TESTS AT AZHI, Even if they have had them done somewhere else.
About How many People can you treat a week?
5 And testing will begin first
Special Rates from Embassy Suites at AZ Biltmore:
All patients on waiting list will receive an email from AZ Biltmore Embassy Suites for discounted rate, discounted dinning at their hotel and FREE shuttle to and from the AZHI. :)
You will most likely be in AZ for 2-3 days. Depending on if your veins are blocked or not. If they are they are working on treating you in that 3 days.
Again Teresa said if anyone has anymore questions to email her. You will hear back much faster than calling her.
So here are my thoughts. I know this waiting time SUCKS!! I am with you all. I am on your side so here's what I have to say. If you are okay with waiting another 2-9 months depending on where you are on the list than GREAT. AZHI will be the best choice, they are taking so much time so that they do everything right and keep their doors open to treat all of you. But if your MS is REALLY BAD and you want this treatment yesterday, here is what I suggest you do. Number one go to an interventional Radiologist and ask to have an ultra sound of your neck. Tell them you have horrible headaches, or that you are dizzy all the time ( which isn't a lie for most of you) and you want to make sure your getting enough blood supply to your brain. Interventional Radiologists are probably the best specialist that will listen and know how to do angioplasty. But go to any Dr. that will listen. Just don't tell them you have MS. Use other reasons that will make them want to scan and treat. Second. Go out of the country, there are many places like Costa Rica, Mexico, and others where there are not long lists.
My prayers are with all of you and I hope you get your treatment ASAP.